Bruno was born on 2 November 2013 in Starogard Gdanski, Poland. He was supposed to be a healthy, cheerful child, for whom his parents couldn’t wait. Unfortunately, after his birth, doctors diagnosed Spina Bifida with a 5 cm long herniated meninges
in the lumbosacral part of the spine, in combination with neurogenic bladder dysfunction, hydrocephalus, paralysis of the legs and one clubbed foot.
The first day of his life was also the day on which Bruno went through his first, life-saving operation. It went well and the doctors were able to close the hernia, but the paralysis of the legs remained. The hydrocephalus turned out to be relatively
low, and when Bruno was seven months old, doctors implanted a PUDENZ valve (in his head) to prevent the development of further hydrocephalus. The corollary is also neurogenic bladder dysfunction as a result of spinal hernia, resulting in limited feeling
of the need to defecate as well as numerous infections of the urinary tract. In turn, this can lead to kidney damage, which requires catheterisation five times each day to prevent it.
Every day, Bruno fights for his independence. He exercises for several hours each day, following routines from various well-known rehabilitation regimes. These are necessary to regain muscle tone in the legs as well as strengthening the tummy muscles.
Daily training in this manner also improves the strength of the muscles of the bladder, regulating bowel movements and enhancing digestion. As a result, Bruno is now able to move his toes and bend his right knee. His natural curiosity and the rehabilitation
exercises led to Bruno’s ability to crawl and sit diagonally.
According to the doctors, Bruno will be able to function quite normally in the future, if he is given proper rehabilitation and care. The costs of the constant help of specialists, participation in rehabilitation classes, the necessary medications and
equipment are far beyond the capacity of Bruno’s parents to provide. We want to seize the opportunity Bruno has to lead a normal life, as well as help support his parents. That being said, it’s not just about the financial support. It could be the help and
advice of professionals, or the opportunity to participate in a specialized treatment or research program. There are many dimensions to helping Bruno. Even a small donation would be greatly appreciated.